XP Family Support Group
Xeroderma Pigmentosum, also known as XP, is a rare inherited disease affecting both males and females. It causes a person to be extremely sensitive to the damaging effects of ultraviolet radiation. Undiagnosed and untreated, Xeroderma Pigmentosum can lead to the early onset of skin cancer and blindness. In addition, approximately 20% of people with Xeroderma Pigmentosum also develop progressive neurological disease. Xeroderma Pigmentosum (XP) Family Support Group exists to improve the quality of life persons of those persons with XP and other diagnosed UV light condition. The Xeroderma Pigmentosum Family support group raises funds for create awareness and educate the public about XP, research, gives grants for UV protective equipment and products, assists families to attend an annual XP convention held once a year at various locations.
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Listing Title: XP Family Support Group